Since April so much has happened! Not only have we done a lot, but Violet has changed so much! Let me start with a few exciting things that have happened:
The girls took their very 1st gymnastics class at the Y, & both absolutely loved it!
They also went to a 4 day Princess Camp, where they learned about a different princess everyday.That was definitely a highlight of their summer!
Violet's last CF clinic visit went well and ahe has now graduated to quarterly is visits. She still cultures the same organism she always has, but such a rare amount that it doesnt require treatment.She is getting taller and starting to lose some of the baby fat, which just means more Pediasure in her future!
As Violet approaches age 3 her attitude and demeanor are changing.She has always been so laid back and happy, but lately she is often clingy and sometimes defiant! Treatment times have become more of a struggle then ever before.I am often chasing her around trying to put her vest on, dragging her kicking and screaming. Or she boldly pulls the hoses out of the vest while its on, hoping to turn it off.All of this behavior is so new for a kid whos always done her treatments, perhaps not always willingly but never so eager to fight me. No matter her behavior I try to stay calm.I get it, being strapped to a vibrating machine with a mask on has got to get old for her, its old for me and Im just a bystander. I know she's just a kid and doesnt yet understand how important these treatments are, or that she'll be doing them the rest of her life.Sadly what she does understand Is WHY she must do them.
The other night she asked why Jesus made her with Cystic Fibrosis????
Gulp.....fighting back tears I replied, because he thought she was extra special.
She thought for a moment and then responded " I cant wait to tell Ava!"
From the mouth of our babe!
