Tuesday, May 14, 2013

What went on while away

Wow I can not believe it has been almost a month since the last post. Yikes! Somehow time has just escaped me, yet April seems so far away. I feel like I may have lost some followers with this gap between updates, but let me explain....

April 17, 2013,  aka the last posting, happened to be a few days after our super successful Victory for Violet fundraiser for CF, also the beginning of the final 3 weeks of my nursing classes, and the inception of our fundraising madness for the Great Strides walk, while also ( may I add) at the same time planning a super exciting weekend away/bachelorette party for one of my best friends.


In the middle of all that exciting stuff were about 3 consecutive weeks of runny noses, coughs, and all over crankiness ( and I'm only referring to the kids at this point) From April 17th until today we have racked up 1 late night paging/texting of our pediatrician, 1 STAT X-Ray and visit to the CF clinic, and not 1 but 2 visits (with both girls in tow) to the pediatrician. The 1st to diagnose them with their 1st ever ear infections and sending us home with an Antibiotic, and yesterday as a 2 week check up to make sure said infections were cleared up, but then ending up suggesting Ava has allergies and sending us home with yet another medication to try........to make a long story short, 2 days before the Amoxicillian was gone the runny noses, sneezing, coughing returned.

At the dr April 30th

Still acting semi-normal

And you thought I was just busy sitting out in the sun didn't you?? Well, we did manage to have some fun in the midst of our "unhealthy episodes"
 Just relaxing with her shades on
Being silly
 
Having a picnic at the park
 
Picnic on the deck
 
 Our family
minus the guest of honor,who stayed home to avoid picking up any germs from her friends
 
 Victory for Violet
 
We also participated in the annual Great Strides Walk for Cystic Fibrosis. Victory for Violet was again a large team, with over 80 members this year. The weather was almost perfect this year,  and our team of purple people succeeded in raising almost $15,000 for just the walk alone! Combined with the 22k from our wine event and the money raised for last year's walk, we are proud to have raised over $70,000!!!! That is SO much money!! And that will be able to be put into SO much research so that HOPEFULLY one day we won't get to do any more fun events, because all the sick boys and girls with CF will be happy, and healthy and cured senior citizens!!
 
Tomorrow is Violet's bi-monthly CF Clinic appointment,the one scheduled before our visit in April. Just like every visit,she will get weighed, measured, listened to, visited by the nurse, doctor, respiratory therapist, dietitian and social worker. She will be mapped on the growth scale, and her med routine will be examined, and most excitingly, we will discuss her eating and toileting patterns. No X-Ray or throat culture should be needed, so hopefully it will be a tear free visit!
The Little Sis is getting so BIG!!
 
 
 If she weighs as much as our bathroom scale says then I think she is gonna get a green light for sure tomorrow! ( I am convinced it measures everyone 5# heavy though)