Oh what a day!!

Oh what a day, this fine Tuesday has been already. Today was an important day for us, so important in fact Andy took a half- day from work so he wouldn't miss out. It's clinic day!!!!

Of course our plans changed when Ava woke up in the middle of the night burning up, with a 101 fever. Even though she acted fine this a.m. We couldn't take her and risk infecting other kids at the Pulmonary clinic. Looks like daddy and Ava time for a bit today!

 

Along with her normal CF clinic check up, Vi was also due for her bi-annual chest x-ray. Very traumatic, in case you've never been lucky enough to witness such a task on a toddler I will spare you specifics. While they say it doesn't hurt ( hurt who? the baby or me?) I believe them, but it still looks like a scary contraption to me! Her last visit was two months ago, and we've been so blessed that she's remained healthy during that time. Her chest x-ray looked great, no infiltrate, nor congestion, just some good looking lungs! Her weight is great, she gained almost 3 lbs since September,which puts her BMI ratio at 61%. All good news!!!

But.....she is having some constipation issues,yuck. Her normal 3-5 stools a day are slowly decreasing, and have more recently been reduced to just once daily,and that one time is after a LOT of work. Poor baby...I hate seeing her red in the face, trying so hard to fill that diaper. I've given prunes, helped her do bicycle kicks and even sat her on the potty ( I took her lead after she pulled her pants down, started undoing her diaper and walking into the bathroom) and nothing.

So after our already exciting x-ray adventure the doc felt her belly and decided we needed to visit radiology yet again today....Oh crap!!!!

By this time it's after 11:00, and after violently crying twice now already this a.m. all my sweet girl wants is to go home and nurse, and snuggle with her mommy. Oh dear child are you in for a surprise! The x-ray confirmed she is very backed up but the good news is there is no obstruction,which is common for CFers. Nothing a bit of Miralax won't fix, hopefully! Free to go at last! A few more tears anytime a nurse talked to her, but we were on our way home. We were rushing to meet the home health nurse, who although was very sweet, did not impress Vi at all. She had had enough today and not so shockingly her smiles have been on hold until further notice.The nurse flew through the exam, went over some paperwork and drew up her shots. While it's heartbreaking to hold your child's arms while they are injected, it's also almost like a sigh of relief. Violet received her 1st dose of Synagis for the year. This vaccinates her against the awful RSV virus that is all too common in the winter.while a cold for most, can be deadly for her. After the nurse left, I tried to feed Vi some lunch, without success. The tears and heavy sighs continued and of course every time she looked down at her band aid the whole process started again.

 So we went up in her room,sat in the rocking chair. She nursed, we rocked, I hummed, she calmed down, and eventually fell asleep. Success! Finally at peace!